111 réponses à ce sujet

[Patrick Weekes]

Hey, all,

I know that a lot of our fans really wish Thane would "get better," or that Shepard could, in ME3, find a "cure for Thane."

I can't speak to anything specific in that regard.

What I can say, however, is that in many ways, the description for Kepral's Syndrome is similar to the real-life disease cystic fibrosis. It's not identical -- many things were simplified so that Thane could reasonably be a functional party member even while slowly dying -- but the model of a progressive disease that reduces lung capacity is based on similar ideas.

Some of that basis, especially as listed in the dossiers written for the Shadow Broker DLC, come from my own limited understanding of CF. I have a good friend who has been living with this disease for her entire life. She has gone in and out of the hospital, steadily developed resistance to different antibiotics because of how many times a simple cold has turned into an infection, and developed diabetes as a side effect of the progress of her condition. Watching her do her exercises, take her meds, and manage her care has shown me how courageous a person can be just getting through everyday life (while I whine about having to take another shot on the old asthma inhaler).

There is no cure for cystic fibrosis at this time. There are treatments, there are procedures, and the life expectancy has risen steadily. My friend has already lived past 30, an age she was told as a child that she'd likely never see.

As I said, CF is not Kepral's Syndrome. In fact, we gave Thane Krios an easier day-to-day life than the average person with cystic fibrosis goes through. I have always been impressed by the BioWare community's strong spirit of action and involvement. If you would like to show your support for the treatment and eventual cure of cystic fibrosis, I would love to see community members make donations to the Cystic Fibrosis Foundation, an American nonprofit organization dedicated to managing care while searching for a cure.

Cystic Fibrosis Foundation's Donation Page
https://www.cff.org/...onate/index.cfm

Cystic Fibrosis Foundation's Overview Page:
http://www.cff.org/aboutCFFoundation/

(This is the organization my friend in California has worked with and raised money for in the past.)

And for those of you local to Canada:
https://cf.donorport...2&F=789&T=GENER

(This is the Canadian organization that my wife and sons and I have done fundraising walks for.)

Thanks for listening.

[LPPrince]

MR. WEEKES.

/automatically going to check these out and retweet

[Siona]

This is a good post, and you should feel good. Thanks for spreading the links and awareness.

[Phaedon]

Please retweet this, guys: http://twitter.com/#...089044318134272

Help the cause.

Modifié par Phaedon, 15 juin 2011 - 08:08 .

[Platform626]

I don't think many people are aware of CF. Thank you for posting this!

[Dave of Canada]

Was going to say something about Thane but after reading the rest of the post, I don't want to sound like an ass. The post made me sad.

Modifié par Dave of Canada, 15 juin 2011 - 08:07 .

[LPPrince]

Cystic Fibrosis is a serious thing to deal with.

[Knight of Dane]

Tali survives Shepardsdisease when romanced, I'm optimistic that Thane is still around, uncured or not

[Bolboreta]

I consider this is a great way to spread the word. Research is vital and we need to support it. Even if Thane dies in ME3, I'm sure he would be proud of people helping this =)

[HTTP 404]

I wish your friend well Patrick.

This sad and wonderful that Thane's story in Me3 be written from the heart

[Funkcase]

Great post! My niece has Cystic Fibrosis.

[Tasha vas Nar Rayya]

Thanks for this post. And here is to hoping that your friend gets better (as much as you can with Cystic Fibrosis.)

[Jebel Krong]

re-tweeted. will try and donate some money here in the uk.

[Stinkface27]

Really good for you to use your position to bring this to public attention. Good job, Mr. Weekes. I'll be re-tweeting.

[ReD BaKen9]

I hope your friend gets better! I'm going to re-tweet this.

[SamT3N7]

Wow, I had no idea... already re-tweeted.

[kaiki01]

You have my support Weekes.

[Cimeas]

Great post. Shows that every story has some humanity behind it in Bioware. I hope the research makes progress. I will see what i can do

[wildannie]

Jebel Krong wrote...

re-tweeted. will try and donate some money here in the uk.

This.

I have an aquaintance (a very nice guy) who suffers from CF, in his 30s and as I understand it is up on the list for needing a transplant now.  

I'd thought Keprals was reminiscent of CF.

UK website where folks can donate too

www.cftrust.org.uk/

Modifié par wildannie, 15 juin 2011 - 08:58 .

[Phaedon]

It's a shame that this thread is not as popular as it deserves to be.

[Whatever42]

A great cause. It's a truly awful disease.

[felipejiraya]

Great post to aware the people to a serious condition!

My uncle had pulmonary hypertension (he has done a lung transplant six months ago) and when he was treating it we've met a lot of people with CF...what a terrible condition.

Modifié par felipejiraya, 15 juin 2011 - 08:47 .

[CroGamer002]

Love to donate but financial difficulties. :-/



I don't even have a job.

[Meesherbeans]

Thank you for this awareness post, sir. Retweeted.

[Alpha-Centuri]

Phaedon wrote...

It's a shame that this thread is not as popular as it deserves to be.

It's probably because people try to escape real life by going on these forums . 

Met a young girl with advanced CF. It really tears my heart. Thanks for posting this to remind us of real issues that we can get involved with and help.