111 réponses à ce sujet

[Caprichosa]

Mesina2 wrote...

Love to donate but financial difficulties. :-/

Don't worry, I donated for you

I'm so glad that after all the constant bull about video games bringing out the worst in people that we can do something truly wonderful as a gaming community. Thoughts/prayers/good vibes (she can take whichever she prefers) go out to your friend, Pat, from my family and I.

Would anyone be interested in doing a walk or some other kind of event for CF as Team Krios? I'd love to spend a day or two with fellow Thane fans (preferably in green face paint) helping cure a real disease for a change.

[KainrycKarr]

Heart goes out to anyone affected. I will be making whatever donation I can this upcoming sunday when I get paid.

[CheeseEnchilada]

Thank you so much for sharing, Mr. Weekes. My heart goes out to your friend, and to all others who are affected. Donating and reposting on facebook now (not to mention all that nagging I'll do!)

And to those who haven't done a walk before, try one out. They're often quite fun, touching, and you're helping a wonderful cause.

[Saerwen]

Thank you for taking the time to draw attention to this disease. I hope that your friend stays strong and lives a long happy life.

[disconnect7]

Great thread, and great cause. Also very clever tying the CF cause in with Thane's story. It's inspiring to hear about people who are living with CF and still living their lives strong. Good luck to anyone living with this disease, or any family/friends who are.

[Massadonious1]

Thanks for sharing, Patrick. I'll donate when I can.

[hangmans tree]

With all the donations, fundraisings to many different causes; the diseases, large and small, catastrophic events, hunger, wars; does this drop of water really matter?

Yes, it does.

With all the ineptitude of human kind... we still are leaves of the same old tree. So let us hope...

[Jebel Krong]

Karin Weekes wrote...

@ Jebel Krong: Thanks kindly for your support. If it helps, the URL for the Cystic Fibrosis Trust in the UK is: http://www.cftrust.org.uk/. Thanks.

wildannie wrote...

Jebel Krong wrote...

re-tweeted. will try and donate some money here in the uk.

This.

I have an aquaintance (a very nice guy) who suffers from CF, in his 30s and as I understand it is up on the list for needing a transplant now.  

I'd thought Keprals was reminiscent of CF.

UK website where folks can donate too

www.cftrust.org.uk/

thanks both, i found the site last night, was going to post it here today, but you both beat me to it! 

if anyone wants, you can make an easy donation at this link (including with paypal): here

Modifié par Jebel Krong, 16 juin 2011 - 08:35 .

[Dracotamer]

Good to see you Mr. Weeks. Will look into this and re-tweet.

[78stonewobble]

My grandfather passed away a few years back at the age of 86. As he put it on a few occasions. He was just "tired". It was time for him mentally and physically. It was fitting in the whole circle of life thing.

But for others that never get to that point of feeling you have lived a full life. I find it very sad that not everyone is "allowed" to get there. Going out so much before their time.

[Shazzie]

As someone who suffers from a chronic, degenerative disease (not CF), my heart goes out to all who have to suffer from bodies that don't function the way they should. And, from the bottom of my heart, I thank every person who has donated to charities or organizations for any of the wild variety of illnesses that plague humankind, or who has had a friend or family member they have aided, or who has even thought positive, hopeful thoughts towards those of us who might have spent every ounce of strength we had into the effort to do nothing more than look good enough to be told 'You're sick? But you look just fine!'.

So, this isn't my disease, but I have to say- Thank you. Thank you.

[Pride Demon]

Nice seeing you, Mr. Weekes...

This is a worthy cause... Thank you for including us all...

Modifié par Pride Demon, 16 juin 2011 - 12:20 .

[TheBorderBishop]

Appreciate the appeal. My best friend's wife sadly lost both her sisters at a young age to it.She herself suffers from CF but has had a successful transplant and doing far better now. Progress is definitely being made but more is still needed. So thank you for helping increase awareness.

[Rachel_Mapp]

 Wow. I don't think I've ever been so moved by someone in my whole life... :')
I am 17 Years old and have suffered with Cystic Fibrosis since I was born, it is amazing for me to see this happening. Especially from one of the BioWare Writers
I love the Mass Effect series and this post has practically moved me to tears! For years my whole family have been donating to the CF Fund and it would be good for people to finally understand what it is and how important it is to donate to the charity. I hope that one day they will find a cure for Cystic Fibrosis.
Thane Krios should be an inspiration to all Mass Effect gamers!
I love you all :')<3<3

[Mirlam]

Wow, thank you for this. This hits close to home for me too. I lost a friend of mine to cystic fibrosis, she wasn't lucky even to reach the age of 20. She never spoke or complained about the disease, such a strong girl she was. So very, very stubborn too, I knew she was ill but she always refused to talk about it, as she didn't want others to feel sorry for her. She even forbid us to visit her in hospital and just shrugged it off as "it's nothing to worry about, I'll be fine." I only found out more about the illness after she passed away from her mother. Of course, it was too late then. To this day I still regret for not spending more time with her during her final days. If I'd only known our time together was limited... It makes me really appreciate this awareness post.

[Therefore_I_Am]

beautifully written. Fortunatley I don't know anyone with CF, but my condolences to those who do.

[Wynne]

As a person who suffered from a mysterious and painful disease in childhood, and lived for roughly a year with the fear of never knowing what was wrong and never getting better, I have only the sincerest sympathy for those who live with cystic fibrosis. I know what it is like to live with severe arthritis and other symptoms. When the pain is at its worst, you're aware of every moment, feeling like you have to hang on to life but almost not wanting to.

I was lucky enough that once I finally knew what was making me sick, a course of IV antibiotics (given through a new vein every few days, since my veins were too thin for the easier treatment) and later oral antibiotics was able to cure most of the symptoms of Lyme, though the spirochete remains dormant in my system. Even this relatively short period in my life affected me incredibly, in profound ways that are difficult to fully detail. If only cystic fibrosis were as easy to cure.

I can only hope that one day there will be relief for sufferers of this disease as well. I very much appreciate that the Mass Effect universe is a realistic one, where there are still incurable medical problems, but I hope for a future where that is someday no longer true. Where everything is at least treatable. Until then, we do what we can. We give what we can, even if it's just a little.

Thank you for posting this, Patrick. My best wishes to your friend.

[Clover Rider]

Dave of Canada wrote...

Was going to say something about Thane but after reading the rest of the post, I don't want to sound like an ass. The post made me sad.

Same here.

[Gterror]

Its a good cause il absolutely try do donate to this.Sorry about your friend too.
In my point of view if i help people i can make a world a better place for myself and to others.

[JeffZero]

Heh, the old asthma inhaler. Same here, Patrick. You really drove it home for me that I shouldn't whine about that so much, though -- earlier today I was guilty of doing so.

I'm fairly poor lately but I always take part of the remainder of my school funding and use it for donations. This year I'll do so for Cystic Fibrosis patients, promise.

[shepskisaac]

Re-tweeted and want to donate, is there an European division of the Foundation or is it just NA?

[Mahalat]

Caprichosa wrote...

Mesina2 wrote...

Love to donate but financial difficulties. :-/

Don't worry, I donated for you

I'm so glad that after all the constant bull about video games bringing out the worst in people that we can do something truly wonderful as a gaming community. Thoughts/prayers/good vibes (she can take whichever she prefers) go out to your friend, Pat, from my family and I.

Would anyone be interested in doing a walk or some other kind of event for CF as Team Krios? I'd love to spend a day or two with fellow Thane fans (preferably in green face paint) helping cure a real disease for a change.

I would LOVE to do something, but don't know how to start. What do you have in mind?

[Caprichosa]

Mahalat wrote...

Caprichosa wrote...

Mesina2 wrote...

Love to donate but financial difficulties. :-/

Don't worry, I donated for you

I'm so glad that after all the constant bull about video games bringing out the worst in people that we can do something truly wonderful as a gaming community. Thoughts/prayers/good vibes (she can take whichever she prefers) go out to your friend, Pat, from my family and I.

Would anyone be interested in doing a walk or some other kind of event for CF as Team Krios? I'd love to spend a day or two with fellow Thane fans (preferably in green face paint) helping cure a real disease for a change.

I would LOVE to do something, but don't know how to start. What do you have in mind?

Glad I could get some interest! Created a group: http://social.bioware.com/group/4606/

There's a list of events that I can attend in the discussions section. I'm personally partial to doing a walk, but there's a lot of choices and I'd like to see what the rest of the potential group would like to do.

Modifié par Caprichosa, 17 juin 2011 - 03:32 .

[Dreverr]

This is a really great cause, my best friend died at 17 due to CF and I have donated once a month for the last 6 years.