111 réponses à ce sujet

[lord berwick]

For anyone who would like to donate towards research and providing services to those with cystic fibrosis in Australia, click on the following link;
http://www.cysticfib...ia/donatetocfa/

Modifié par lord berwick, 17 juin 2011 - 05:51 .

[Ryllen Laerth Kriel]

How do Drell feel about cyberization? Synthetic lungs perhaps?

Good post overall Mr. Weekes, and I can only hope the best for your friend and a cure to such a condition.

[Kidd]

I never knew about this disease before. Nothing I want anybody to live with, that's for sure. So I did my part.

[AquamanOS]

I had a classmate with the disease. We weren't overly close but I saw how she suffered, and how she missed tons of school time due to being in the hospital.

Unfortunately she didn't make it past 16. I'm glad to here your friend is having a better time hanging on.

[RurouniSaiya-jin]

Thanks for this. I'm always on the lookout for charities to donate to. I'll be sure to add this to the list.

[Niddy']

Thane died in me2.

[Carn Dum]

It's a very nice idea to mobilize the community for something positive.

I have to admit that it can be hard to feel emotionally involved with people who are suffering from a terrible disease if you don't know any people suffering from such a disease yourself. It's good to be reminded of things like this through a video game from time to time.

I have donated to the Dutch counterpart of the organization mentioned in the original post:

http://www.ncfs.nl/index.php

Maybe some more Dutchies want to join me in supporting them.

Modifié par Carn Dum, 18 juin 2011 - 01:16 .

[aries1001]

Thank you Patrick and Karen for bringing people's attention to this disease. I don't know anyone with this disease, but I do know difficult life can be for people who a severe lung diseasee. My own mother had such a disease, not CF, though, but another one.

In her spirit, I've found this Danish site:

http://www.cystiskfi...dk/default.html
(it is,l of course, in Danish...)

PS: Great also to see that characters in video games are not perfect, too....

/aries1001

[adlocutio]

Patrick Weekes wrote...
[snip]

Thank you for your post. Cystic Fibrosis touches many, many lives, including that of my older sister, Katie, who died when she was 6 years old.  As you said, treatments have thankfully extended the lives of many people, but living with CF is difficult at best.

I sincerely appreciate your efforts, and the efforts of anyone who donates to the quest for a cure or anyone who helps to raise awareness.  It's a horrible way to die, and those with CF deserve much better.

[SeaSquared]

I knew very little of CF before but now I realize just how serious a condition it is and I know there are many who would help but don't know help is needed, its time to change that.

[dshoub]

Knight of Dane wrote...

Tali survives Shepardsdisease when romanced, I'm optimistic that Thane is still around, uncured or not

Tali didn't contract a disease, she ran a high fever and was sick for a bit (she describes it as an allergic reaction when asked about why Quarians get sick) unfortunately Thane's illness is not the same, and like CF, there is currently no cure. Although he does comment on the Hanar working on trying to cure it through genetic manipulation (or something along those lines), but that it may take years and he only has months left. Whether you look at it from the Kepral's viewpoint or the real-world Cystic Fibrosis aspect it's sad.

[General Malor]

Nice. I would like to see Thane get better. In video games, or fiction in general, whenever I see people with a chronic condition I always wish to see them get better. I mean if I can't get better, someone should be able to, eh? It's just nice to see. Hopefully Thane and Joker will get something to make their lives easier

[Not Bambi]

Thank you for posting, Mr Weekes. I don't have much to say, but I'll donate and stop whining about not eating gluten for a while.

[BeanieBat]

As most of the others have said, this is a really good post, and a good way to spread awareness of CF. During my time in research I have studied bacteria that cause CF patients a lot of problems, and as a result I know that the CF trust can use all the donations that it can get to further this research and I do what I can to help out. I'm also trying to get back in to CF research, though unfortunately the CF lab where I live had to close.

[Getorex]

Patrick Weekes wrote...

Hey, all,

I know that a lot of our fans really wish Thane would "get better," or that Shepard could, in ME3, find a "cure for Thane."

I can't speak to anything specific in that regard.

What I can say, however, is that in many ways, the description for Kepral's Syndrome is similar to the real-life disease cystic fibrosis. It's not identical -- many things were simplified so that Thane could reasonably be a functional party member even while slowly dying -- but the model of a progressive disease that reduces lung capacity is based on similar ideas.

Some of that basis, especially as listed in the dossiers written for the Shadow Broker DLC, come from my own limited understanding of CF. I have a good friend who has been living with this disease for her entire life. She has gone in and out of the hospital, steadily developed resistance to different antibiotics because of how many times a simple cold has turned into an infection, and developed diabetes as a side effect of the progress of her condition. Watching her do her exercises, take her meds, and manage her care has shown me how courageous a person can be just getting through everyday life (while I whine about having to take another shot on the old asthma inhaler).

There is no cure for cystic fibrosis at this time. There are treatments, there are procedures, and the life expectancy has risen steadily. My friend has already lived past 30, an age she was told as a child that she'd likely never see.

...

One thing: we are currently VERY early in the 21st century and there is already talk of cures for CF.  THere are certainly avenues for exploration towards curative treatment.  The ME games are taking place at the edge of the 22nd/23rd century.  Seeing how far in the future that is, there is no way there wouldn't be a cure (even if it had to be done brute-force-like with nanotech assemblers) for CF, let alone KS in ME.

The whole Joker with a brittle bone disease struck me all wrong too.  In THAT day and age?  No way.  Cured prenatally very likely, postnatally with virtual certainty.   

Modifié par Getorex, 19 juin 2011 - 04:56 .

[clipped_wolf]

I have a friend who has been living with CF for over fifty years. The doctors said he wouldn't live to his first year, his fifth year, then the doctor told his mother he wouldn't live to be an adult. She stopped taking him to see those doctors. Decades later a doctor told him he would be dead before he reached fifty. My friend said, "Tell you what, on my fiftieth birthday I'll buy YOU a steak dinner." I don't know if he ever did, but the story made me laugh.
He says some days are worse than others and he can't always get out of bed. He takes his meds and he continues to live with his wife in New Mexico.

[Rawke]

Ryllen Laerth Kriel wrote...

How do Drell feel about cyberization? Synthetic lungs perhaps?

Not possible for Drell so far. Says so somewhere in the Shadowbroker Dossiers.

[murreah]

I myself have Cystic Fibrosis and have gone almost three years since having a double lung transplant. Thanks for this.

[Aggie Punbot]

Would someone be able to assist me in finding a link on one of those pages that details how much of one's donation actually goes to cystic fibrosis research and how much is deducted for administration fees?

[Biowaresucksbigtime]

jdunn1 wrote...

^^^I know this is feeding an obvious troll, but we are not bickering about some plot point or character from a fictional universe; this is a genuine request from bioware for the community to make a REAL difference in the REAL world. This was in such poor taste that I had to say something. Shame on you.
.

Cystic Fiber?
 What the hell is that even? Its sounds so fake, like the genius writing team of Dragon age 2 came up with it. Its not even a real dysease, and you all are making up fake stories so the devs will give you free copies of mass effect 3

god grow up guys

[Biowaresucksbigtime]

http://t0.gstatic.co...i21eKmMWG8tDicU

[aries1001]

CF or Cystic Fibrosis is indeed a real disease; it's a genetic carried disease (as I remember it from biology class in school). It does effect the lungs, and people with this disease have someting wrong with their lungs. [As I remember it, the lungs can't be cleaned properly? or the lungs can't clean the blood properly?)] And so muckus etc. builds up and they need to get oxygen another way - artificially...

As for CF or something similar existing in the 23rd century, why not? As I've understood Patrick Weekes, it is not CF, but Thane has a disease whose sympstons are somewhat similar to those of CF...

[AngelicMachinery]

biggestselloutsintheindustry wrote...

Look at this, bioware asking for money. Not surprising at all. You guys suck and who cares if your a bioware writer. thats about as prestigious as being a call of duty writer.

tl;dr not giving money to bioware or any other charity. Knowing bioware those are all just proxy sites for them to rake in more money to feed to their overlords at EA

This man is an ass.